According to WHO, “Rehabilitation” or also commonly called “Rehab” is defined as
“a set of steps designed to improve functioning and reduce disability in individuals with health conditions in relation to their environment”.
Neuromuscular Disorders include a large range of diseases affecting the skeletal/voluntary muscle (muscle that we can control) function either directly related to muscle pathologies or indirectly related to problems with the nerves or the neuromuscular junctions. The causes for these disorders are mixed which could be genetic/inherited related or acquired or due to unknown causes.
Although NMD’s are incurable but an effective Rehab Program can help maintain the followings:
a patient’s quality of life (QoL),
increase the patient’s physical and psychosocial functions.
Basically, it is highly in favor of individual’s goals and desires, for which the Rehab Team is establish and is able to provide services from inpatient to outpatient hospital settings, whether it is in private clinics, or even at community locations such as - an individual’s home.
1. THE COMPOSITION of a rehab team
The Rehab Team includes various person in a medical role. It is not only limited to physiotherapists, but also includes, occupational therapists, speech and language therapists, audiologists, orthotists and prosthetists, clinical psychologists, physiatrists specializing in Physical Medicine and Rehabilitation along with nurses.
2. BENEFITS OF UNDERGOING A REHAB PROGRAM
Maintenance of QoL
Better Physical Health and overall body condition
Upgrade in mood, emotional & mental strength
Individual’s can be financially supportive to their family
Care-taking burden for families to look-over patient is managed
Recurrent Hospital stays prevented, therefore less infectious spread.
Prolonged life expectancy of patient with better living conditions.
3. RISKS INVOLVED IN SKIPPING REHAB PROGRAM
Decrease in Overall Physical Health
Loss of – muscle strength, movement in joints, abnormal alignment of body parts, aerobic capacity, lung functions and motor functions.
Formation of Contractures & Deformities
Almost no use/movements of joints & body parts for a long period of time can lead to tightening of muscles and fixation of joints in the position as they are, therefore, individual can face difficulty in use of their limbs & body for even selfcare and activities.
Ignorance of mobility and movements, physically, can result in overall body aches & pains, thus making movement more difficult and challenging. These pains are hard to control at later stages and need extensive medical and surgical help.
Depression of Activities
Minimal physical activities can affect overall psychosocial, mental, emotional health & functions. Therefore, they are unable to participate in society, thence, they tend to isolate themselves from others.
Increase in Financial and Family Stress:
An individual and their family members starts feeling themselves as locked at home in care of one person, burdening of financial and physical needs within the family, adding to stigma of “diseased-homes”.
Risk of recurrent Hospital Admissions & decrease in life expectancy
Avoiding Rehab programs can lead to risk of hospital re-admissions & lengthy hospital stays. Also, individual suffering with NMD, cut-short days of an individual’s life.
4. EVIDENCE BASED DATA ANALYSIS FOR NMD INDIVIDUAL’S
In an overview, especially the patients suffering with NMD’s, have decrease in life expectancy ratio as compared to other foreign countries as the quality of life and healthcare services decreases for the individual because of lack of rehab providence.For Example- Individual’s suffering with DMD have life expectancy of up to- 31-35 years, whereas in India children hardly live up to 5 years that is 15-19 years of age from diagnosis.